Please contact the provider's office to confirm that your insurance is accepted.ĭr. Judith Thompson Devlin is the ISN Story Editor for this story.Please note: Insurance information may change at any time, and the provider may accept your insurance plan even if it is not listed below. Her story was featured in ISN's book, Voices of Scleroderma Volume 2. Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. ISN Artist: Sherrill Knaggs (In Loving Memory) LINKS En Coup de Sabre Linear Scleroderma Types of Scleroderma Story posted 05-02-06 SLE ISN Senior Artist: Sherrill Knaggs Story Editor: Judith Thompson Devlin
Mays will be willing to try UVA or UVB phototherapy, since from what I have read, this seems to hold the most promise for stopping the damage of linear morphea. From my internet research, I am hopeful that Dr. When I asked about more aggressive treatment options, such as methotrexate, he told me that at this point in my case, the risks outweighed the benefits for methotrexate and other, more powerful drugs. The rheumatologist encouraged me to continue the calcipotriene ointment and also prescribed 400 mg Plaquenil per day.
#Dr filemon tan skin
Filemon Tan, confirmed the diagnosis of linear morphea, ordered lab tests to verify his suspected absence of systemic scleroderma, and referred me to a Houston dermatologist, Steven Mays (Also UT/Houston Medical Center), for treatment of the skin effects. Since I live in Houston, Texas (home to the world's largest medical center complex), I am lucky enough to be able to see true experts in the treatment of scleroderma (office of Frank Arnett, M.D., Professor and Director of the Division of Rheumatology, University of Texas/Houston Medical Center). Problems that seemed big yesterday have shrunk to microscopic size. I have feelings of absolute devastation and regret at not doing more with my 'before diagnosis' life. Although thankful that I probably do not have the systemic form of scleroderma, the possibility (probability?) of disfigurement is terrifying. Needless to say, the search results were scary as hell and not encouraging. She diagnosed linear morphea, gave me a prescription for calcipotriene ointment, and urged me to schedule an appointment with a rheumatologist as soon as possible.Īfter leaving her office, I began researching en coup de sabre on the internet. Within the past two months, a purplish line developed down the center of my forehead along with a narrow furrow. I s aw my dermatologist today and told her that four or five months ago, I noticed a small indentation at my hairline near the center of my forehead. I wish myself and everyone the best in coping with scleroderma. Hopefully, someone can benefit from the posting of my events as I commit to posting follow-ups regularly. To me, posts with follow-ups are the most comforting. I am posting my story 'as it happens' because reading the posts on this board made me feel less alone after my diagnosis. I am an otherwise healthy, thirty-eight-year-old female, diagnosed with the en coup de sabre form of linear scleroderma. By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms Carmen: Linear Morphea, En Coup de Sabre I have feelings of absolute devastation and regret at not doing more with my 'before diagnosis' life.
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